Links - Professional


 

Infant Loss-General

Now I Lay Me Down to Sleep www.nilmdts.org
Now I Lay Me Down to Sleep is a non-profit organization that offers gentle and beautiful photography and videography services in a compassionate and sensitive manner to all parents experiencing the death of a baby. The soft, gentle heirloom photographs are an important part of the healing process, allowing families to honor and cherish their babies and share the spirits of their lives. There are no fees for services provided. The local representative is Tammy Councilman at Portrait Expressions in Greensboro, 681-0861.

Centering Corporation and Grief Digest www.centering.org
A clearinghouse for infant loss resources, children and grief resources and general grief resources.

Gundersen Lutheran Bereavement Services www.bereavementprograms.com
The leading national and international provider of bereavement training and support services for professionals who care for bereaved families. Bereavement Services teaches an interdisciplinary approach to help professionals implement effective, consistent bereavement care in their own healthcare, organizational, or community setting and provides helpful resources. 

M.I.S.S. Foundation www.missfoundation.org
The MISS Foundation provides crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities. The site has a section for medical professionals/caregivers.

Hygeia www.hygeia.org
Hygeia is described as an "Online Journal for Pregnancy and Neonatal Loss." This is an apt description, as one section is monthly articles, often medically oriented, relating to various topics of relevance. These articles, written mostly by members of the Yale University medical staff (Hygeia’s website creator, Dr. Michael Berman, is an Associate Clinical Professor at Yale’s University School of Medicine, Dept. of Ob/Gyn), include such topics as intrauterine growth retardation, ectopic pregnancy, molar pregnancy, and placental causes of pregnancy complications. Other sections include a Visitor’s Contribution area for sharing, e-mail registries for both families and caregivers, a complete volume of Poetry, and a Memories area for posting of pictures or other mementos. Poetry is heavily interspersed in all areas, which some may find comforting. Hygeia, with an emphasis on both emotional healing and medical information, is probably the most complete of the websites that currently exist.

Hospice and Palliative Care of Greensboro Counseling and Education Center www.hospicegso.org
Hospice and Palliative Care of Greensboro offers one-to-one support including short-term, individual grief counseling and pastoral counseling. The site provides an overview of counseling and education services available. 

Kids Path www.kidspath.com
Kids Path is Hospice's children's program. This program provides home care for children with serious and life-limiting illnesses with more open admission standards than for adult patients. Kids Path also offers counseling and bereavement camps for children who have experienced the death of a loved one, including anticipated siblings or siblings less than one year of age. Site provides overview of available programs. 

Hospice and Palliative CareCenter (Winston-Salem) www.hospicecarecenter.org
Hospice and Palliative Care Center offers one-to-one support including individual grief counseling and pastoral counseling at no charge for one year following the death of a loved one. The site provides an overview of counseling and education services available.

 

SIDS 

First Candle/SIDS Alliance www.firstcandle.org
First Candle/SIDS Alliance is a national health organization uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival.

The National SIDS/Infant Death Resource Center www.sidscenter.org
The National SIDS/Infant Death Resource Center (NSIDRC) provides information services and technical assistance on sudden infant death syndrome (SIDS) and related topics. The NSIDRC collaborates with the National SIDS & Infant Death Program Support Center, the National Center for Cultural Competence and the National SIDS & Infant Death Project IMPACT. All of the programs work together to provide educational materials, resources, technical assistance, publications, services for bereavement support and risk reduction, as well as helping to improve services to underserved populations.

 

Genetics

Genetic and Rare Condition Site www.kumc.edu
Site contains information on genetic conditions /birth defects for professionals, educators, and individuals.

 

Multiples

Center for Loss in Multiple Birth www.climb-support.org 
Network of parents throughout the United States, Canada, Australia, New Zealand and beyond who have experienced the death of one or more, both or all of our twins or higher multiples at any time from conception through birth, infancy and childhood. 
Website provides comprehensive written materials and resources specific to the loss of multiples.

Fetal Hope Foundation www.fetalhope.org 
The Fetal Hope Foundation provides support and information for families and medical professionals about fetal distresses and syndromes afflicting multiples such as Twin-to-Twin Transfusion Syndrome, Acardiac Twinning (TRAP sequence), Amniotic Band Syndrome and Fetal Lower Urinary Tract Obstruction. The organization, which is aligned with some of the world’s leading fetal medicine centers, also funds research, increases awareness with events such as its TTTS Race for Hope, and serves as an outlet for leading medical information. 

The Twin to Twin Transfusion Syndrome www.tttsfoundation.org
The Twin to Twin Transfusion Syndrome Foundation provides immediate and lifesaving educational, emotional and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin to twin transfusion syndrome. The Foundation is dedicated to saving the babies, improving their future health and care, providing NICU, special needs and bereavement support, furthering medical research, and keeping families together the way twins are meant to be.

 

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