Heartstrings of Greensboro does not directly endorse any of the sites on this list. We are simply hoping that you will find these sites helpful. Please let us know if you have found other helpful sites that you would like to see added to this list. We will update the links regularly, so please visit again.

Click on a category below to quickly acess a specific subject or scroll through the entire page to browse all subjects.

FOR BEREAVED FAMILIES
Infant Loss-General

National Fetal and Infant Mortality Review Program (NFIMR) www.acog.org/goto/nfimr
The National Fetal and Infant Mortality Review Program is a collaborative effort between the American College of Obstetricians and Gynecologists and the Maternal and Child Health Bureau, Health Resources and Services Administration.

M.I.S.S. Foundation www.missfoundation.org
The MISS Foundation provides crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.

SHARE Pregnancy and Infant Loss Support, Inc http://www.nationalshareoffice.com
The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life. All information packets, correspondence, and support are free of charge for bereaved parents.

StorkNet.Com Pregnancy/Infant Loss Cubby http://www.storknet.com/cubbies/pil/index.html
Cubby includes Q&A, article, links, support, reading list specific to infant loss.

A Heartbreaking Choice, http://www.aheartbreakingchoice.com
This is a site for parents who have made the decision to end a much-wanted pregnancy due to severe or lethal birth defects.

Feelings of the Fathers, http://www.thelaboroflove.com/forum/loss/fathers.html
A site dedicated to fathers who are suffering the loss of their child. Includes links articles and links to other father-specific web pages. A good starting point for a father.

Hospice and Palliative Care of Greensboro Counseling and Education Center
http://www.hospicegso.org/html/education.html
Hospice and Palliative Care of Greensboro offers one-to-one support including short-term, individual grief counseling and pastoral counseling. The site provides an overview of counseling and education services available.

Kids Path http://www.hospicegso.org/html/kids.html
Kids Path is Hospice's children's program. This program provides home care for children with serious and life-limiting illnesses with more open admission standards than for adult patients. Kids Path also offers counseling and bereavement camps for children who have experienced the death of a loved one, including an anticipated sibling or siblings less than one year of age. Site provides overview of available programs.

Hospice and Palliative Care Center (Winston-Salem) http://www.hospicecarecenter.org
Hospice and Palliative Care Center offers one-to-one support including individual grief counseling and pastoral counseling at no charge for one year following the death of a loved one. The site provides an overview of counseling and education services available.
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Specialized Forums

Alliance of Grandparents, A Support in Tragedy (AGAST) http://www.agast.org
AGAST is an all volunteer organization dedicated to helping grandparents through the trauma, stress and grief after the loss of a grandchild.

Bereaved Single Mothers Forum http://forums.delphiforums.com/bereavedsnglmom/start
A safe place for single parents that have experienced the loss of a newborn or miscarriage. Focus is on issues surrounding grieving alone and not having a significant other, or relationships lost due to the stress involved with the loss of your baby.
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Medical-Specific

Ectopic Pregnancy Trust http://www.ectopic.org
The Ectopic Pregnancy Trust raises awareness of ectopic pregnancies amongst women of childbearing age, the medical profession and the general public. The Trust also provides support and information to couples who have suffered an ectopic pregnancy; supports research into the underlying causes, treatment and prevention; and improve the diagnosis and treatment of ectopics through the establishment of Best Practice Guidelines

FertilityPlus http://www.fertilityplus.org/faq/miscarriage/resources.html
FertilityPlus is a non-profit website for patient information on trying to conceive. The site includes a comprehensive resource list which provides newsgroups and Listservs for support, medical information websites, ectopic and molar pregnancy websites, recurrent miscarriage/pregnancy loss websites, support group web sites, emotional aspects of loss websites, online memorials, chat rooms and bulletin boards for support and a book list.
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Congenital Heart Conditions

Little Hearts Matter http://www.lhm.org.uk
Little Hearts Matter is a national voice for families where a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Atresia has been diagnosed. The charity works with medical and social care teams to offer a multi-disciplinary approach to the support and information needed by this group of people and their careers.

Hypoplastic Left Heart Syndrome Angels http://health.groups.yahoo.com/group/HLHSAngels
Online support for those who have lost babies to hypoplastic left heart syndrome.
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SIDS

First Candle/SIDS Alliance http://www.firstcandle.org
First Candle/SIDS Alliance is a national nonprofit health organization uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival. With help from a national network of member and partner organizations, we are working to increase public participation and support in the fight against infant mortality.
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Stillbirth

Missing Grace Foundation, http://www.missinggrace.org
Missing GRACE Foundation’s mission is to provide resources and support for families that have experienced: pregnancy loss, infant loss, infertility or adoption and to advocate for comprehensive, patient focused prenatal care for all women. Five core areas encompass the heart of the mission: Grieve, Restore, Arise, Commemorate and Educate. The nonprofit foundation is dedicated to raising awareness of stillbirth prevention methods and ways to reduce risk of all types of pregnancy and infant death.
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Genetics

Genetic and Rare Condition Site http://www.kumc.edu/gec/support/index.html
Site contains information on genetic conditions /birth defects for professionals, educators, and individuals.

A Trisomy 18 Journey http://www.geocities.com/wilsfordmindy
A website created by parents who experienced the loss of a baby to Trisomy 18. The site offers hope to those who have just received this diagnosis or a similar diagnosis or who have experienced a loss due to this diagnosis as well as helpful information on Trisomy 18.
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Multiples

Center for Loss in Multiple Birth http://www.climb-support.org
Network of parents throughout the United States, Canada, Australia, New Zealand and beyond who have experienced the death of one or more, both or all of our twins or higher multiples at any time from conception through birth, infancy and childhood.
Website provides comprehensive written materials and resources specific to the loss of multiples.

Fetal Hope Foundation http://www.fetalhope.org
The Fetal Hope Foundation provides support and information for families and medical professionals about fetal distresses and syndromes afflicting multiples such as Twin-to-Twin Transfusion Syndrome, Acardiac Twinning (TRAP sequence), Amniotic Band Syndrome and Fetal Lower Urinary Tract Obstruction. The organization, which is aligned with some of the world’s leading fetal medicine centers, also funds research, increases awareness with events such as its TTTS Race for Hope, and serves as an outlet for leading medical information.

The Twin to Twin Transfusion Syndrome http://www.tttsfoundation.org
Transfusion Syndrome Foundation provides immediate and lifesaving educational, emotional and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin to twin transfusion syndrome. The Foundation is dedicated to saving the babies, improving their future health and care, providing NICU, special needs and bereavement support, furthering medical research, and keeping families together the way twins are meant to be.
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FOR MEDICAL PROFESSIONALS & CAREGIVERS

Infant Loss-General

Now I Lay Me Down to Sleep http://www.nilmdts.org
Now I Lay Me Down to Sleep is a non-profit organization that offers gentle and beautiful photography and videography services in a compassionate and sensitive manner to all parents experiencing the death of a baby. The soft, gentle heirloom photographs are an important part of the healing process, allowing families to honor and cherish their babies and share the spirits of their lives. There are no fees for services provided. The local representative is Rhonda Lester at Memory Lane Portraits in High Point, 474-6867.

Centering Corporation and Grief Digest http://www.centering.org
A clearinghouse for infant loss resources, children and grief resources and general grief resources.

Gundersen Lutheran Bereavement Services http://www.bereavementprograms.com
The leading national and international provider of bereavement training and support services for professionals who care for bereaved families. Bereavement Services teaches an interdisciplinary approach to help professionals implement effective, consistent bereavement care in their own healthcare, organizational, or community setting and provides helpful resources.

M.I.S.S. Foundation http://www.missfoundation.org
The MISS Foundation provides crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities. The site has a section for medical professionals/caregivers.

Hygeia http://www.hygeia.org
Hygeia is described as an "Online Journal for Pregnancy and Neonatal Loss." This is an apt description, as one section is monthly articles, often medically oriented, relating to various topics of relevance. These articles, written mostly by members of the Yale University medical staff (Hygeia’s website creator, Dr. Michael Berman, is an Associate Clinical Professor at Yale’s University School of Medicine, Dept. of Ob/Gyn), include such topics as intrauterine growth retardation, ectopic pregnancy, molar pregnancy, and placental causes of pregnancy complications. Other sections include a Visitor’s Contribution area for sharing, e-mail registries for both families and caregivers, a complete volume of Poetry, and a Memories area for posting of pictures or other mementos. Poetry is heavily interspersed in all areas, which some may find comforting. Hygeia, with an emphasis on both emotional healing and medical information, is probably the most complete of the websites that currently exist.

Hospice and Palliative Care of Greensboro Counseling and Education Center
http://www.hospicegso.org/html/education.html
Hospice and Palliative Care of Greensboro offers one-to-one support including short-term, individual grief counseling and pastoral counseling. The site provides an overview of counseling and education services available.

Kids Path http://www.hospicegso.org/html/kids.html
Kids Path is Hospice's children's program. This program provides home care for children with serious and life-limiting illnesses with more open admission standards than for adult patients. Kids Path also offers counseling and bereavement camps for children who have experienced the death of a loved one, including anticipated siblings or siblings less than one year of age. Site provides overview of available programs.

Hospice and Palliative Care Center (Winston-Salem) http://www.hospicecarecenter.org
Hospice and Palliative Care Center offers one-to-one support including individual grief counseling and pastoral counseling at no charge for one year following the death of a loved one. The site provides an overview of counseling and education services available.
Back to Top.

SIDS

First Candle/SIDS Alliance http://www.firstcandle.org
First Candle/SIDS Alliance is a national health organization uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival.

The National SIDS/Infant Death Resource Center http://www.sidscenter.org
The National SIDS/Infant Death Resource Center (NSIDRC) provides information services and technical assistance on sudden infant death syndrome (SIDS) and related topics. The NSIDRC collaborates with the National SIDS & Infant Death Program Support Center, the National Center for Cultural Competence and the National SIDS & Infant Death Project IMPACT. All of the programs work together to provide educational materials, resources, technical assistance, publications, services for bereavement support and risk reduction, as well as helping to improve services to underserved populations.
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Genetics

Genetic and Rare Condition Site http://www.kumc.edu/gec/support/index.html
Site contains information on genetic conditions /birth defects for professionals, educators, and individuals.
Back to Top.

Multiples

Center for Loss in Multiple Birth http://www.climb-support.org
Network of parents throughout the United States, Canada, Australia, New Zealand and beyond who have experienced the death of one or more, both or all of our twins or higher multiples at any time from conception through birth, infancy and childhood.
Website provides comprehensive written materials and resources specific to the loss of multiples.

Fetal Hope Foundation http://www.fetalhope.org
The Fetal Hope Foundation provides support and information for families and medical professionals about fetal distresses and syndromes afflicting multiples such as Twin-to-Twin Transfusion Syndrome, Acardiac Twinning (TRAP sequence), Amniotic Band Syndrome and Fetal Lower Urinary Tract Obstruction. The organization, which is aligned with some of the world’s leading fetal medicine centers, also funds research, increases awareness with events such as its TTTS Race for Hope, and serves as an outlet for leading medical information.

The Twin to Twin Transfusion Syndrome http://www.tttsfoundation.org
The Twin to Twin Transfusion Syndrome Foundation provides immediate and lifesaving educational, emotional and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin to twin transfusion syndrome. The Foundation is dedicated to saving the babies, improving their future health and care, providing NICU, special needs and bereavement support, furthering medical research, and keeping families together the way twins are meant to be.
Back to Top.